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A parent’s perspective on shaping critical-care research
- Amy DentCommunity Partner at Imperial College London
Key points
- Taking part in public and patient engagement research gives a parent the chance to give something back after a child's PICU stay.
- The research team was flexible and adaptable about meeting times and length, which helped a parent with a young child feel part of the project.
- Parent contributors can reflect on the processes, how methods should be used, which questions families feel comfortable with, and how projects should be tailored.
Amy Dent, Community Partner at Imperial College London, shares a parent’s perspective on participating in paediatric critical-care research. She describes how patient and public involvement offers a way to contribute lived experience and help shape the questions and methods used by research teams. The interview explores the importance of flexible, supportive participation and the value of feeling that family perspectives are heard. Amy reflects on giving back through research, working with others and helping develop projects that are relevant to the experiences and priorities of children and their families.
This interview took place at the PCCS Annual Scientific Meeting 2026 in London.
Read the transcript
Automatic transcript, lightly edited for readability. It may contain errors, so check it against the video before quoting.
Hello, I'm Amy Dent and I'm a parent, and my little boy was in PICU in December 2025. I'm really grateful for the opportunity to be part of the public patient engagement research, because it's provided a great opportunity for me to give something back. I felt supported throughout the project.
My little boy was 6 months when he was in PICU. So he's now 18 months. They're still at their younger ages and they've been so flexible in making me feel part of the project and welcome. They've been adaptable in relation to timings for meetings and how long you can stay in a meeting. Even if my little boy has had to be in the background of some of them, it's been a great opportunity.
I've been able to reflect on the processes that they go through, maybe how the methods should be used, what questions we feel comfortable with, and how they should tailor their projects going forward. So it's been great to be part of it. Thank you so much.
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Cite this video
Amy Dent. “A parent’s perspective on shaping critical-care research.” The Paediatric Video Journal, 7 November 2026. https://paediatricvj.com/videos/a-parent-s-perspective-on-shaping-critical-care-research-dent/
This interview is educational content intended for healthcare professionals and is not medical advice. Views expressed are those of the speaker. © The Paediatric Video Journal. All rights reserved.