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Putting patient and family voices at the heart of research
- Dr Julie MenziesClinical Academic Nurse Researcher at Bristol Royal Hospital for Children
Key points
- Working with patients and families is valuable in research, audit, quality improvement and service evaluation.
- Within the paediatric critical care incubator, a national group has been set up to support researchers with the early stages of developing a research idea.
- Families' voices should be heard in any piece of work, whatever its nature, and there is much more that could be done.
Dr Julie Menzies, Clinical Academic Nurse Researcher at Bristol Royal Hospital for Children, discusses the importance of involving patients and families in paediatric critical-care research. She describes work within the paediatric critical-care research incubator and how a national involvement group can help researchers develop early ideas. The interview considers the contribution of lived experience to research questions and study design, as well as audit, quality improvement and service evaluation. Dr Menzies highlights opportunities to make participation a more consistent part of clinical and academic work and to ensure that research reflects what matters to families.
This interview took place at the PCCS Annual Scientific Meeting 2026 in London.
Read the transcript
Automatic transcript, lightly edited for readability. It may contain errors, so check it against the video before quoting.
Hi, I'm Julie. My message today as a nurse researcher who leads on patient and public involvement and engagement within the paediatric critical care incubator is about the power of working with our patients and families, whether it's within research, audit, quality improvement, service evaluation. My work has all been about promoting the value of this, and within the incubator we've set up a national group to help support researchers with those early stages of developing a research idea.
And my message to the wider community is it's really important that we're hearing their voice in any piece of work we're doing, whatever the nature of it. And there's much more that we could do.
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Cite this video
Dr Julie Menzies. “Putting patient and family voices at the heart of research.” The Paediatric Video Journal, 7 November 2026. https://paediatricvj.com/videos/putting-patient-and-family-voices-at-the-heart-of-research-menzies/
This interview is educational content intended for healthcare professionals and is not medical advice. Views expressed are those of the speaker. © The Paediatric Video Journal. All rights reserved.